Someone sent me a link to a blog by a man with leukaemia the other day, it was so honest and open that it was impossible not to be moved by it: http://baldyblog.freshblogs.co.uk/
It made me think that in order for my blog to be more constructive perhaps I should be more honest and open about the issues I face especially the issue of having a child with the same disability as me.
But it's SO hard being honest with myself about the whole thing sometimes.
One of the issues I'm currently thinking about after a recent visit to the consultant is how far would I go to prevent Archie getting the same curved spine [lordosis] I have, a symptom of having Kniest. My problem is that perhaps the one thing I've always hated about having Kniest is the curved spine aspect of it - it made me semi-suicidal when I was a teenager.
But even if intervention is possible [and I currently don't know if it is because the consultant we actually went to see was "on a course", great] it will involve spinal surgery which is obviously not without great risk.
Would I be wrong to persue this option or wrong not to?
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