I had a twinge of sadness today as Archie [my 3 year old who has the same disability as me] was saying "when I’m bigger", "when I’m taller like daddy I’ll do more climbing."
I don't know how tall he will end up but the expected height range for Kniest is: 100 - 140 cm.
I know that I didn’t really clock my size difference til I was remarkably old, I’m sure I must have noticed [I’m not stupid] but perhaps I chose to block it out?
It's hard now hearing Archie’s aspirations, however small or transcient they may be. I know it's just something he was saying and he won't remember it tomorrow but it's still hard.
With me I remember there was one thing I really wanted to do when I was younger and that was to be able to kneel down and then sit back on my feet, for the simple reason that it looked really comfy and everyone else could do it.
I even told a physio about it. She said oh if you do this exercise and that one you’ll be able to do it. It was utter rubbish, as I would never have had the flexibility. Perhaps she was being nice but ultimately I felt very bitter that I couldn’t, in spite of doing the exercises, achieve this position.
At what point does honesty become the best policy?
2 comments:
In Italy the participation of lengthening can be made the limbs, many children with skeletal dysplasia makes this operation. To London it is not possible? in any case the honesty is the choice more tests
Manuela
moi_manuela@yahoo.it
I found your blog because we both listed "learning French" in our bios. I'm glad that I found it because I have found your post interesting and thought provoking. I look forward to reading more of your thoughts. Regards,
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