Recently Archie [who has Kniest Syndrome which means he will never be that tall] has talked about when he is older and with that he talks about being taller...
When I mentioned this to my partner Mike he said we mustn't lie to him; indeed I haven't lied to him but I have used vague words like 'possibly/maybe/I'm not sure/I don't think so' in response to comments Archie's made like "when I'm older I'll be as tall as daddy"....
I mean is there any point in saying to him at just 3 1/2 years old, "actually Archie you're not going to be as tall as daddy, you're probably going to be more like mummy's height"? In fact when Mike did say that to him the other day he said "no, I'm going to be as tall as you daddy..."
The thing is is the whole truth helpful at this stage? Will it help him to adjust to the reality of the future? Or could it possibly have a negative effect?
If you know the answer please tell me!
Showing posts with label being short. Show all posts
Showing posts with label being short. Show all posts
Wednesday, July 9, 2008
Thursday, March 20, 2008
When does honesty become the best policy?
I had a twinge of sadness today as Archie [my 3 year old who has the same disability as me] was saying "when I’m bigger", "when I’m taller like daddy I’ll do more climbing."
I don't know how tall he will end up but the expected height range for Kniest is: 100 - 140 cm.
I know that I didn’t really clock my size difference til I was remarkably old, I’m sure I must have noticed [I’m not stupid] but perhaps I chose to block it out?
It's hard now hearing Archie’s aspirations, however small or transcient they may be. I know it's just something he was saying and he won't remember it tomorrow but it's still hard.
With me I remember there was one thing I really wanted to do when I was younger and that was to be able to kneel down and then sit back on my feet, for the simple reason that it looked really comfy and everyone else could do it.
I even told a physio about it. She said oh if you do this exercise and that one you’ll be able to do it. It was utter rubbish, as I would never have had the flexibility. Perhaps she was being nice but ultimately I felt very bitter that I couldn’t, in spite of doing the exercises, achieve this position.
At what point does honesty become the best policy?
I don't know how tall he will end up but the expected height range for Kniest is: 100 - 140 cm.
I know that I didn’t really clock my size difference til I was remarkably old, I’m sure I must have noticed [I’m not stupid] but perhaps I chose to block it out?
It's hard now hearing Archie’s aspirations, however small or transcient they may be. I know it's just something he was saying and he won't remember it tomorrow but it's still hard.
With me I remember there was one thing I really wanted to do when I was younger and that was to be able to kneel down and then sit back on my feet, for the simple reason that it looked really comfy and everyone else could do it.
I even told a physio about it. She said oh if you do this exercise and that one you’ll be able to do it. It was utter rubbish, as I would never have had the flexibility. Perhaps she was being nice but ultimately I felt very bitter that I couldn’t, in spite of doing the exercises, achieve this position.
At what point does honesty become the best policy?
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